“But You LOOK Good” is what people always say to my wife after they find out that she suffers from both Chronic Progressive MS and Late Stage Chronic Lyme Disease. Even though she is daily in pain and overwhelmed by fatigue, she still “Looks Good”.
“Looking Good” is a description of what our society sees as a part of a quality life. But is what “healthy” people define as quality of life the only standard for some one to be alive. The old adage “At least you have your health” has helped reinforce this mindset. What if you lose your health? Do you give up on living? No! You fight back because life is worth living no matter what the cost and you know that life is a precious gift to be cherished.
I wonder would we starve Terri Schiavo if she “Looked Good”. Or maybe a person has to have a certain number of Quality of Life aspects whatever they are. Life is not about “Looking Good” or being “Healthy,” it is about being human and having the RIGHT to live. By the way, “Looking Good” doesn’t have anything to do with how a person feels. After all, most of us will “Look Good” at least one point in our lives, when we’re lying in a casket.
As the Founder & President of The Invisible Disabilities Advocate and Where Is God Ministries, I believe we must fight the most for those who suffer and can not fight for themselves. I don’t want judges to ever take my wife’s life away!
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